LEARN MORE

 

On this page you will find a range of resources to help you learn more about albinism and the work of Standing Voice.

Search through our newsletters, reports and videos; discover our educational resources and academic publications; or dive into our fundraising materials to learn how you can get involved.

 
 

Videos

The best way to learn about our work is to hear from the people who make it happen. Standing Voice began as a documentary, and our charity has a long history of capturing the stories of the people work with through a lens.

Browse a short selection of our videos here, or head over to our Vimeo page to discover more.

 
 

Click to view our annual reports and accounts:

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Click to view our previous newsletters:

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Learn about the World Forum on Skin Cancer Prevention and Management in people with Albinism

Learn more
 

Educational Resources

 

Manual of Best Practice for Dermatologists
Developed by SV and the ILDS, and funded by Novartis and the Pierre Fabre Foundation. Download French version here

Albinism Booklet for Teachers Credit funders. Explain context. Hyperlink to Swahili.

Albinism Booklet for Teachers
Developed by Standing Voice and Lancaster, Coventry, and Worcester Universities. Download Swahili version here

Booklet on Albinism and Covid-19 Thank funders. Hyperlink Swahili and Chichewa.

Information booklet for PWA, Families and Caregivers
Our purpose-built guide to increase knowledge on albinism. Download Swahili and Chichewa here

 
 
Click below to see our key publications on albinism in Africa, as well as important fundraising materials to help you get involved!

Publications

  • [Rebecca Kammer, "Low-Vision Rehabilitation and Albinism", in Albinism in Africa: Historical, Geographical, Medical, Genetic, and Psychosocial Aspects, eds. Jennifer Kromberg and Prashiela Manga | Elsevier: New York, 2018

Fundraising