LEARN MORE
On this page you will find a range of resources to help you learn more about albinism and the work of Standing Voice.
Search through our newsletters, reports and videos; discover our educational resources and academic publications; or dive into our fundraising materials to learn how you can get involved.
Videos
The best way to learn about our work is to hear from the people who make it happen. Standing Voice began as a documentary, and our charity has a long history of capturing the stories of the people work with through a lens.
Browse a short selection of our videos here, or head over to our Vimeo page to discover more.
Click to view our annual reports and accounts:
Click to view our previous newsletters:
Learn about the World Forum on Skin Cancer Prevention and Management in people with Albinism
Educational Resources
Manual of Best Practice for Dermatologists
Developed by SV and the ILDS, and funded by Novartis and the Pierre Fabre Foundation. Download French version here
Albinism Booklet for Teachers
Developed by Standing Voice and Lancaster, Coventry, and Worcester Universities. Download Swahili version here
Information booklet for PWA, Families and Caregivers
Our purpose-built guide to increase knowledge on albinism. Download Swahili and Chichewa here
Publications
Sam Clarke and Jon Beale, "Albinism and Social Marginalization", in Albinism in Africa: Historical, Geographical, Medical, Genetic, and Psychosocial Aspects, eds. Jennifer Kromberg and Prashiela Manga | Elsevier: New York, 2018
[ Rebecca Kammer, "Low-Vision Rehabilitation and Albinism", in Albinism in Africa: Historical, Geographical, Medical, Genetic, and Psychosocial Aspects, eds. Jennifer Kromberg and Prashiela Manga | Elsevier: New York, 2018
Written Statement, 40th Regular Session of the United Nations Human Rights Council | Geneva: 2019
Oral Statement, 43rd Regular Session of the United Nations Human Rights Council | Geneva: 2020
