A DECADE OF PARTNERSHIP
STANDING VOICE & FONDATION PIERRE FABRE
Ten Years Working Together
For ten years, Standing Voice and Fondation Pierre Fabre have worked together to improve access to healthcare and wider opportunities for people with albinism across Africa.
Since the partnership began in 2016, our work together has grown significantly. From strengthening access to life-saving skin cancer prevention and treatment, the partnership has helped expand a wider model of support encompassing vision, wellbeing and livelihoods.
A decade on, the partnership continues to evolve — strengthening health systems, building evidence and working towards sustainable, locally led services for people with albinism.
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The Story
10 Years of Impact
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Voices of the Partnership
Looking Ahead
2016-2026
Ten years of working together
For ten years, Standing Voice and Fondation Pierre Fabre have worked together to improve access to healthcare and wider opportunities for people with albinism across Africa.
Since the partnership began in 2016, our work together has grown significantly. From strengthening access to life-saving skin cancer prevention and treatment, the partnership has helped expand a wider model of support encompassing vision, wellbeing and livelihoods.
A decade on, the partnership continues to evolve — strengthening health systems, building evidence and working towards sustainable, locally led services for people with albinism.
Jump ▿
The Story
10 Years of Impact
Watch XXXXXXX
Voices of the Partnership
Looking Ahead
10 Years Of Impact In Numbers
14k+
people with albinism reached
300+
health
facilities
14k+
people with albinism reached
80k+
skin
examinations
14k+
people with albinism reached
Watch a short film exploring a decade of partnership between Standing Voice and Fondation Pierre Fabre, told through the people and communities at the heart
of our work.
From Partnership to Lasting Change / How The Partnership Has Grown
In Focus: Manual of Best Practice
The SCPP is driving systemic change in Africa by strengthening the capacity of health workers to prevent, diagnose and treat skin cancer in people with albinism.
Through clinical training workshops we’ve equipped hundreds of health workers with practical, life-saving skills. To support this training and standardise best practice, we have developed a toolkit, including publishing the first-ever internationally recognised Manual of Best Practice in Dermatological Care for People with Albinism in Africa.
Developed in partnership with the International Foundation for Dermatology and funded by the International League of Dermatological Societies, Novartis, and the Pierre Fabre Foundation, the manual is tailored to the African context and designed to support learning for dermatology officers, surgeons, clinical officers and nurses, consolidating current knowledge and promoting excellence in dermatological care for people with albinism.
Authored by medical experts from Tanzania, Malawi, the UK, the USA, and Spain, the manual was led by Dr Andrew Sharp, Chair of the Standing Voice Medical Advisory Board. This board guides the clinical direction of the Skin Cancer Prevention Programme and oversees its training provision.
The manual is available in English and French and has been distributed to health workers across ten African countries - Tanzania, Malawi, Uganda, Zimbabwe, Rwanda, Togo, Côte d'Ivoire, Burkino Faso, Mali and Niger.
Download a copy of the manual HERE.
Voices From The Partnership
Manual of Best Practice
A guide to skin cancer prevention and management for people with albinism in Africa, Funded by the ILDS.
Surviving the Sun
A short film following one families battle against Skin Cancer in Tanzania. Funded by the Pierre Fabre Foundation.
World Skin Health Day
A film made by the International League of Dermatological Societies to mark World Skin Health Day 2024
Information booklet for PWA, Families and Caregivers
Our purpose-built guide to increase knowledge on albinism
Ufulu Wanga (Our Rights)
A short film charting the Skin Cancer Prevention Programme in Malawi. Funded by the EU & the Pierre Fabre Foundation.
Meet Silas
The tragic story of one man’s battle with skin cancer
Voices From The Partnership
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The Next Chapter / Looking Ahead
Ten years of partnership have shown what sustained investment, local expertise and collaboration can achieve. Now, Standing Voice and the Fondation Pierre Fabre are looking ahead — strengthening systems, building evidence and working towards a future in which every person with albinism can access the healthcare and support they need.
